bowling benefit with many, many auctions along with it, visited University Medical Center Arizona(UMCAZ), drove myself to a kart race in Tucson(the drive alone was murderous), had a consultation at Scripps Green Hospital in La Jolla(San Diego), received official approval for transplant at UMCAZ, found a new church that we both really like; most of this stuff, luckily, we already owned prior to my sickness, or id be a very bored boy. ßYou see that punctuation? That’s a period, but it’s probably the most tentative period I’ve ever written; I almost certainly forgot a lot of instances and will positively remember them after I post the blog.
rolling your eyes and getting ready to click out right about now; go ahead, you’ll be missing out. I have the most awesome and incredible friends and family support system that anybody could ever ask for in times like this and I know that in the depths and breadths of my heart; I’m actually tearing up just thinking and writing about you all and the gargantuan amount of generosity you have forwarded to my famn damily and I. I have been so blessed to have you all in my life, I can’t even name all of you, there are even perfect strangers sending assistance and/or prayers that go further than anybody could ever imagine; he’s placed you all in my life for a
There are two things that are constantly running through my mind on a regular basis; one of these is a song. All of you have had one of those songs that get stuck in your head for a day or so, and you can’t get it out, no matter what, you hum it, whistle it, sing it and sometimes scream it. Well I’ve got one of my own, that has been in my head for about 6+ weeks now; not because it has one of those dumb-but-catchy tunes to it, or really that it’s my favorite, it just sticks because it applies to me right now and it reminds me of who I am. You’re probably screaming at the computer because I just reminded you of that song that you finally got rid of, my bad, not my intention, but funny nonetheless; that or the fact that you don’t know the song yet, well here it is: ‘Give Me Faith’ – Elevation Worship. I find myself, as I am sure many Christians and other religious do, needing a reminder of who we are/were/should be, or simply just and uplifting and hearing this song helps to push me through some of my trials and tribulations that I mentioned above. The part of the song that really hits me and brings tears to my eyes goes a little like this:
. Due to this, playing outside was a tough request, with the 120˚ weather, wind, dust, and occasional(almost daily) rattler visit; although tough, it was a requirement since I’m sure a bunch of kids running around inside got rather annoying(it does these days and I’m not the kid). After baking for a couple of hours, not that kind of baking Mr. Marley, though I am sure a lot of that went on in other households, we would all invade the house, grab an otter-pop or two, and plop down on the sectional in front of the TV; if I remember correctly she had not type of TV service so it normally ended up being a Disney movie of some sort. The picture that I’ve been leading up to, was mounted on the wall at the end of the sectional, and was clearly visible from any seat on the couch. To describe it, it was a simple beach scene, half beach, half tide and had one set of foot prints in the sand walking down the beach and was overlaid with a poem, the very poem that gives me that last bit of oomph to push through when I don’t have somebody else to lend a hand:
He may not be literally and physically carrying you himself, but He works in miraculous ways; He has placed my wife, her entire family, their friends, their church, my family, their friends, and every extension and connection that comes from all of the aforementioned in my life to do something great, and I love them all for each bit of it.
So without further ado, the smash, bam, crunch, and crashes of late. I’ve previously wrote about falling and twitching and nonchalantly calling it similar to “time travel”,
well since that post, it had gotten somewhat more serious with falling on flat ground five times, down the hill in front of our house once, on top of some constructions supplies in the shed once, and here’s the kicker, down the stairs twice; one of the stair events I supermaned it down eight stairs, face first into the wall at the bottom; nearly each fall occurrence included a sprain of some sort including nearly breaking my ankle and neck, more pills. I was in the ER twice, more pills, I had, and still get severe shoulder pains nearly every morning, that I assume come from dialysis, more pills, excruciating leg/arm/jaw/neck/ankle/knee/back/hand/every muscle cramps nightly, more pills, and even occasionally during the day, more pills, consistent migraines, more pills, I’ve had a nose infection for five months and had been given three antibiotics and a crème to get rid of it, no dice, more pills. Had the worst Dr. visit I’ve ever had, more pills, learned that after my transplant I can NEVER have sushi(my favorite) again…ever, more pills, missed my nephews first football game, more pills, learned of the death of a greatly loved racing Friend, Art Gutierrez, more pills, missed the graduation of both my brother Travis and my soon to be Sister-In-Law, Elise, more pills, I can’t play with my son, nieces and nephews the way a 28 year old uncle and father should be able to, I can’t swim in a lake, public pool, water park, rivers, more pills, I’ve missed family camping trips and kart races, more pills, I have a 3rd grade bedtime(8:30), more pills, exercise that should be an everyday occurrence without any strain just kills me(one time up our stairs make me fall over in exhaustion), more pills. Probably the worst part of all this, is that I am forced to rely on somebody to do nearly anything and everything I do. There was another episode that happened that was pretty hefty, I awoke suddenly one morning covered in sweat and bawling my eyes out,
not because I had one of those unlimited falling dreams or anything, it was a really nice dream, my mom showed up in it; you’ll get the details on that later.
Most of you have probably fallen asleep by now as it seems I am trying to compete, in length not quality of course, with books like War and Peace; although quality doesn’t come close, the amount of naps needed to finish probably come close. For those of you that are still hanging on by a thread and haven’t dozed off or given up like the rest, you’re in luck, this episode is almost over. Don’t go pulling you hair out like it’s the last episode of Breaking Bad, I will be writing more; I actually thought this one out. Due to the fact that I had a lot of information to catch you all up on, and you’ve notice I simply listed each happening; I did this so that in future posts I have something to elaborate on, all whilst attempting to include something completely current as well to avoid one of these monstrous writings necessitating themselves again.